MRI and EMG tests done

Will had his MRI and EMG of his face (testing nerve conduction to muscles with little electric impulses). He was sedated with IV meds. They had a hard time finding a vein, so we had to wait for the IV team to get it started. He did really well!
The ped. neurologist did the EMG, so we talked quite a bit when that was done. He'll review the MRI more and call me probably next week. He said it really does appear to be Moebius syndrome. There is a website specific for Moebius syndrome. It has good information and stories about others with this. Most children/people with this are intelligent and able to do everything that others do in life. With his vision being good (possible glasses for normal type nearsightedness later in life), his hearing good and being able to suck, he is at an advantage. He does have weakness in his neck area, so we are working to get him to be able to hold his head up better. He uses both hands and is focusing more; he reached both hands to grab a soft toy the other day. He won't be able to ever move his eyes side to side, smile, frown or make different expressions with his face. He does have feeling in his face even though he can't move it.
All the doctors that have seen him are very impressed with how well his feet look. He should have no problems with walking or running. He will need PT and OT and possibly speech to make sure he can talk well and gain strength and coordination in his upper body. Although his arm muscles already can hold him up. All the doctors note that he is stronger than most babies. We hope those movements get more and more coordinated and I believe they are.
His jaw can move and so can his tongue, so we hope eating and speech will be good. His weight is now 15 lbs 3 oz and 24 inches long!! The doctors want me to try him on rice cereal. I'm eager to see how he responds to that and if he can swallow it OK.