Will had his vision appointment at the University of Minnesota clinic on Friday. It was very thorough and had some good news as a result.
He does not need glasses because his eyes have good vision! The doctor said that he might need glasses in the future for nearsightedness, but nothing at present. His optic nerve is excellent and so is the health of his eyes. Some things that we knew are, that he cannot move his eyes from side to side so it's hard for him to track. She said that there isn't a surgery that can correct that since it is the nerves that control the muscles that are affected. He also crosses his eyes a lot and they still rotate upward, but she also would not do any surgery to correct the eye muscles at this time, she would like to see how they improve over the next months and check him again in September. Another good thing is that his eyes do have feeling, so he can feel wind or other things and blink to protect them. Although he doesn't blink as much as you or I, he'll use lubricant drops when he's sleeping to protect his eyes.
He's still trying to get better head control, so with his head bobbing, it's sometimes hard for him to also focus his eyes, but he's getting better. He saw the toys hanging on his car seat and started to giggle. He has a new exercise toy now to help him gain strength in his neck and more control of his arms.
On Wednesday we return to the U of MN clinic for an MRI of his head and an EMG, which tests the muscles in his face. It'll be done while he is sedated. After this week, we hope to have a break from hours in the car seat, although he's a trooper when it comes to travel!
The pictures are of Will's shoes, and a couple of him on his new toy. It was hot today here, so he's chilling without his shoes or clothes.
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